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Resources

On this page, you will find listed some additional resources which can be accessed for further information about MS.

Worldwide MS Organisations

Multiple Sclerosis International Federation (MSIF)

A comprehensive, international information resource developed by MS experts worldwide

International Organisation of MS Nurses

The first international organization focusing solely on the needs and goals of professional nurses, anywhere in the world, who care for people with MS

European MS Organisations

European Committee for Treatment and Research in MS (ECTRIMS)

An independent representative European-wide organisation devoted to MS

Rehabilitation in MS (RIMS)

European network for best practice and research. Aims to enhance activity, participation and autonomy of people with MS by developing and advocating evidence-based rehabilitation.

The European MS Platform (EMSP)

EMSP is the umbrella organisation for 37 MS societies from 34 European countries.

International / European Publications

Life and MS

Contains relevant information on the most common symptoms of MS, as well as its causes, signs, incidence and available treatments. Available in English, Danish, German, Spanish and Swedish.

Multiple Sclerosis Journal

Focuses on the aetiology and pathogenesis of demyelinating and inflammatory diseases of the central nervous system and on the application of such studies to scientifically based therapy.

International Journal of MS Care

Official peer-reviewed journal of the Consortium of Multiple Sclerosis Centers (CMSC). It is also the official publication of the International Organization of Multiple Sclerosis Nurses (IOMSN), the International Organization of Multiple Sclerosis Rehabilitation Therapists (IOMSRT), and Rehabilitation in Multiple Sclerosis (RIMS).

Multiple Sclerosis Care - A Practical Manual

Zajicek J, Freeman J, Porter B. Oxford: Oxford University Press; 2007 ISBN 978019856983-1

Concise and easy to use reference source for all aspects of care in the management and understanding of MS

Multiple sclerosis therapeutics 4th ed

Cohen AJ, Richard A. Rudick . Cambridge: Cambridge Unversity Press; 2011 ISBN 0521766273

Experts discuss disease and symptom management for MS subtypes, including neuromyelitis optica and pediatric MS. In addition, key scientific advances in MS pathology, genetics, immunology and epidemiology are presented.

Comprehensive nursing care in multiple sclerosis. 3rd ed

Halper J, Holland NJ (eds). New York: Springer Publishing Company; 2010 ISBN 0826118526

A useful resource for all nurses caring for MS patients and families

McAlpine's Multiple Sclerosis 4th ed.

Compston A, et al (eds). London: Churchill Livingstone; 2005 ISBN 044307271X

Resources specific for the UK

MS Society

The UK’s biggest MS charity

MS Trust

Dedicated to making life better for people living with MS by providing free information to everyone affected by MS and by supporting the health professionals who work with MS

UK MS Specialist Nurse Association

Professional membership organisation for Clinical Nurse Specialists in MS and for other health and social care professionals with an interest in the care of people with MS in the United Kingdom.

MS Resource Centre

MSRC supports anyone affected by MS and helps with information, advice and support.

Therapists in MS

Therapists in MS is an initiative which brings together allied health professionals who share a special interest in MS

NICE clinical guideline

The NICE clinical guideline on MS covers the full range of care that should be available from the NHS to adults of all ages with MS.

Way Ahead

This newsletter is produced quarterly for nurses and health professionals who work with people with MS. Apart from general news and updates, each edition has two or three articles which explore an area of interest in clinical management.

Resources specific for USA/North America

MS Foundation

The Multiple Sclerosis Foundation provides a comprehensive approach to helping people with MS maintain their health and well-being.

Consortium of MS Centers

Professional organization for MS healthcare providers and researchers in North America, and a valued partner in the global MS community.

MS Association of America

MSAA is a national nonprofit organization whose mission is to enrich the quality of life for everyone affected by MS.

National MS Society

The Society helps people affected by MS by funding cutting-edge research, driving change through advocacy, facilitating professional education, and providing programs and services that help people with MS and their families move their lives forward.

Resources specific for Austria

Austrian Neurological Society

The Austrian Neurology Society was founded in 2000 and views itself as both a scientific organisation and as a service organisation for Austrian neurologists. The society has developed rapidly and now has more than 760 members.

Austrian MS Society

Resources specific for Czech Republic

Aktivni Zivot

Unie Roska

Czech Republic MS Society

Občanské sdružení SMS

Neurologie Pro Praxi

Neurology for Practice journal

RS Kompas

A programme for patients with MS that provides a number of services free of charge

www.lepsipeceozivot.cz

Havrdová, Eva. Roztroušená skleróza. Vyd. 3. Praha: Triton, 2002.
ISBN: 80-7254-280-X.

Havrdová, Eva. Roztroušená skleróza. Vyd. 2. Maxdorf 2009. Edice Farmakoterapie pro praxi.
ISBN: 978-80-7345-187-5.

Resources specific for Finland

Resources specific for Spain

La Sociedad Espanola de Neurologia (SEN)

Una asociación regida con carácter general, por la vigente Ley Orgánica 1/2002, de 22 de marzo, reguladora del Derecho de Asociación y de forma específica se regulará por el contenido de sus vigentes Estatutos, que goza de personalidad jurídica propia, sin ánimo de lucro, y que desarrolla sus actividades en todo el territorio del Estado español.

Sociedad Española de Enfermería Neurológica

Una asociación muy joven, de profesionales de enfermería cuya finalidad es el desarrollo de la atención y cuidado del paciente neurológico, su familia y entorno

La Esclerosis Múltiple

La Esclerosis Múltiple es una enfermedad neurológica que se suele presentar en adultos jóvenes. Su origen y su cura son desconocidos, pero la investigación no cesa. En ella reside la esperanza de encontrar pronto una solución definitiva a la Esclerosis Múltiple.

La Fundació Esclerosi Múltiple

La Fundació Esclerosi Múltiple és una entitat que treballa amb l’objectiu de millorar la qualitat de vida de les persones afectades d’esclerosi múltiple.

Resources specific for The Netherlands

Nationaal MS Fonds

Het Nationaal MS Fonds is hierdoor een full service organisatie op het gebied van MS, waar zowel mensen met MS en hun naasten als MS professionals en geïnteresseerden terecht kunnen. 1998 De eerste Nationale MS Dag vindt plaats in navolging van de drukbezochte voorlichtingsavonden. De behoefte aan concrete en heldere informatie is zeer groot. Om diezelfde reden ziet het ‘101 vragenboek’ het licht in dit jaar. Het Nationaal MS Fonds wil mensen met MS die informatie geven die nodig is.

MS Netwerk

Op deze site is voor iedere discipline die zich professioneel met MS bezig houdt een sectie ingericht waarbinnen de professionals met elkaar kunnen communiceren, berichten uitwisselen, bestanden plaatsen etc.

Multiple Sclerose Vereniging Nederland

De MS Vereniging is een krachtige en actieve vereniging die opkomt voor de belangen van mensen met MS en hun betrokkenen. Honderden enthousiaste leden/vrijwilligers organiseren activiteiten in hun eigen regio.

MA Anders

De stichting MS-Anders maakt zich sterk voor een betere kwaliteit van leven van patiënten met Multiple Sclerose.

De verpleegkundige in de AGZ, Specialistische verpleegkundige zorg, chapter 10.1 Multiple Sclerosis. Jüngen, Kerstens, Sesink. Bohn Stafleu van Loghum, Nederlands,1e druk.
ISBN 9789031379453