spoke at the MEP Interest Group on Brain Health and Neurological Conditions in the European Parliament.
The meeting, organised by the European Federation of Neurological Associations (EFNA), aimed to spotlight the often invisible yet devastating challenges faced by individuals living with neurological conditions and their caregivers, including stigma, discrimination, and socio-economic burdens.
Drawing on insights from the MS Barometer, Kasilingam highlighted several critical issues requiring urgent attention across Europe, including insufficient financial support for home adaptations and inconsistent caregiver support systems among member states.
She particularly emphasised how current disability legislation falls short in addressing MS's complex and fluctuating nature, especially regarding invisible symptoms like chronic pain and fatigue.
Kasilingam also stressed the vital need for expanded research to better understand MS triggers and symptom fluctuations, which is crucial for developing more effective treatments and support systems.
On International Day of Persons with Disabilities, EMSP, alongside over 50 organizations, called on the EU Equality Commissioner to extend the EU Disability Rights Strategy beyond 2023.
Without an updated roadmap, Europe risks stagnating in advancing disability rights.
This advocacy effort aims to maintain momentum in ensuring a better quality of life for all individuals with disabilities, including those with MS.
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