World MS day puts the spotlight on diagnosis
World MS day puts the spotlight on diagnosis
08/07/2024
0

World MS Day on May 30th focused on early and accurate diagnosis. Despite progress, a report by MS Australia revealed an average 4-year delay from symptom onset to diagnosis, leading to irreversible damage and disability progression.

Educational reads on Chat GPT, paediatric MS, cladribine guidance, cognitive impairment
08/07/2024
0

ChatGPT vs. neurologist: what do patient prefer? High efficacy treatment in paediatric-onset MS to significantly reduce disability progression. Updated guidance on cladribine for aggressive RRMS. PwMS with cognitive impairment tend to report a worse quality of life compared to PwMS without it. 

Subcutaneous ocrelizumab approved in EU
Subcutaneous ocrelizumab approved in EU
08/07/2024
1

The European Commission has approved a subcutaneous formulation of ocrelizumab to treat adults with MS and it is now available to people with relapsing forms of multiple sclerosis as well as primary progressive multiple sclerosis. 

Boosting Adult Immunizations
Boosting Adult Immunizations
08/07/2024
0

Despite effective vaccines, many older adults suffer from preventable diseases. At the 2023 AAFP Family Medicine Experience, experts Jeremy Szeto and Kristen Robillard shared strategies to optimize adult vaccinations and enhance doctor-patient communication.

Join the MS Awareness Run!
Join the MS Awareness Run!
09/07/2024
24

Join Multiple Sclerosis Awareness Run during the Brussels Airport Half Marathon or 7K on November 3rd! Have fun and raise awareness and support for people affected with MS by participating in this event and help improve their lives.

Maintaining your own health: Avoiding burnout
Maintaining your own health: Avoiding burnout
10/07/2024
40

Nurse burnout, prevalent in up to 68% of nurses, not only affects the well-being of nurses but also has significant negative impacts on patients and healthcare organizations. Read how to recognise the signs and how to avoid burning-out.

Epstein-Barr virus (EBV) and MS
Epstein-Barr virus (EBV) and MS
10/07/2024
79

BEHIND-MS and EBV-MS: Two initiatives that delve into the crucial relationship between the Epstein-Barr virus (EBV) and MS, aiming to uncover new insights and therapeutic strategies, especially that recent discoveries have identified EBV infection as a significant risk factor for developing MS. 

Pregnancy and multiple sclerosis.
Pregnancy and multiple sclerosis.
09/07/2024
228

Get up-to-date on 'How misinformation affects family planning choices of women with MS'; 'Pregnancy clinics and the role of the MS Specialist Nurse' and Transitioning of MS care from adolescence to adulthoud.

Digital Skills for nurses caring for PwMS
Digital Skills for nurses caring for PwMS
12/03/2024
702

Read this article to gain insights into reliable digital information sources for neuroscience nurses and individuals with MS, along with tips on navigating these sources. Learn digital skills to better support your people with MS. 

Sign the Petition for Quality Access to Care
Sign the Petition for Quality Access to Care
12/03/2024
316

Sign the One Million Minds petition & urge the EU to provide Quality Access to Care for people with MS & neurological conditions. Every voice counts! 

Empower Change: Our Neuroscience Nurse Workload Survey 2024
Empower Change: Our Neuroscience Nurse Workload Survey 2024
06/02/2024
222

Our international survey on neuroscience workload was completed by 127 nurses. THANK YOU. We will soon publish the results and advocate for improved conditions for nurses caring for PwMS.

The role of nutrition and diet in MS
The role of nutrition and diet in MS
19/12/2023
104

Unlock your MS health potential! A balanced diet empowers symptom control, emphasizing vital nutrients for resilience and well-being. Find out how you and your patients can improve through diet.

Reflecting on the MS Nurse PRO Session at ECTRIMS 2023
Reflecting on the MS Nurse PRO Session at ECTRIMS 2023
21/12/2023
177

MS Nurse PRO at ECTRIMS 2023 empowered nurses, addressed challenges in MS care, and sparked collaboration, fostering advancements in patient well-being and knowledge exchange for a transformative impact on the field.

Speech difficulties in MS
Speech difficulties in MS
30/10/2023
192

 Unlock insights on aiding MS patients' speech challenges, optimizing care with practical tips and strategies for enhanced communication.

MS and working life difficulties
MS and working life difficulties
19/10/2023
662

Employment issues are common due to cognitive and physical challenges, necessitating support and adaptation. How can we assit our patients?

Crucial Link: Sleep Disorders and Fatigue in Multiple Sclerosis
Crucial Link: Sleep Disorders and Fatigue in Multiple Sclerosis
06/10/2023
604

Addressing sleep disorders early in individuals with MS is crucial. Insomnia and related conditions heighten fatigue risk, emphasizing the need for timely diagnosis and treatment to mitigate their impact.

Spotlight: Trigeminal neuralgia in MS
Spotlight: Trigeminal neuralgia in MS
28/07/2023
477

Trigeminal neuralgia, a neuropathic pain syndrome, affects MS patients, causing sudden, paroxysmal pain in the face. While medications offer some relief, surgical intervention may be necessary. A multidisciplinary care approach shows promise in improving patients' quality of life. 

Palliative care in MS – how is this evolving?
Palliative care in MS – how is this evolving?
28/07/2023
371

Palliative care in MS goes far beyond end-of-life assistance, encompassing a holistic approach right from diagnosis. With a multidisciplinary team focused on physical, emotional, and spiritual well-being, it empowers patients to lead active lives throughout their journey. Discover the transformative power of early palliative care, enhancing the quality of life for those living with MS.

ECTRIMS 2023 Shines Spotlight on MS Nursing Community
ECTRIMS 2023 Shines Spotlight on MS Nursing Community
28/07/2023
762

ECTRIMS 2023's standout event is the MS Nurse PRO Session on Oct 11. Exclusive to MS nurses, it addresses pregnancy, childhood MS, and family planning, offering vital insights for improved patient care.

MS Nurse PRO Annual Gathering 2023: Empowering Patients with MS to Thrive in the Workplace
MS Nurse PRO Annual Gathering 2023: Empowering Patients with MS to Thrive in the Workplace
27/07/2023
385

The MS Nurse PRO Annual Gathering 2023 united nurses from Europe to support patients with MS in work challenges, featuring expert insights from Inger Grethe Løyning.

WHO Endorses Essential Medicines for Multiple Sclerosis
WHO Endorses Essential Medicines for Multiple Sclerosis
26/07/2023
248

WHO has endorsed three essential medicines for MS treatment. This landmark decision opens new avenues for improved care and access to treatment for the approximately 2.8 million people worldwide living with MS.

Understanding how research can influence MS nursing practice
Understanding how research can influence MS nursing practice
09/03/2023
592

Research is extremly important for MS nurses as it allows for a better understanding about how it is implemented in clinical practice and to improve patient outcomes.

MS care after COVID-19: Where are we now?
MS care after COVID-19: Where are we now?
14/01/2023
475

The COVID-19 pandemic has indefinitely changed our health system. It has also stimulated MS healthcare professionals to find new solutions to deliver interventions to people with MS. Read exactly how here.

Differentiating between MS, NMOSD, and MOGAD
Differentiating between MS, NMOSD, and MOGAD
20/12/2022
1367

There are a number of different autoimmune disorders with similarities to MS, such as NMOSD and MOGAD. It is important for the nursing community to stay alert and know the particularities of each disorder. Read more about it in our educational blog on the topic.

The role of the MS Nurse: The science and the heart
The role of the MS Nurse: The science and the heart
05/12/2022
777

Guest blogpost written by Megan Roberts, MS Nurse. Living with MS is hard- the role of the MS nurse is to make living with MS a little easier for everyone with MS – not just those on DMTs. MS nursing is part science, part art- and mostly heart.

The successes of Flexible Work-based Learning
The successes of Flexible Work-based Learning
30/11/2022
528

Flexible learning opportunities allowing individuals to work and study at the same time are very much welcomed by the nursing community. They bring both career development as well as innovative new responses to practical issues. Read about some fo the MS Nurse PRO experiences.

The need of social support for young people
The need of social support for young people
20/10/2022
475

The coping behavior of patients living with MS has been highly connected to the social support they received, especially support by family, friends, or other patients with MS. The Young People's Network started by EMSP offers just that!

New Course on Research in MS Nursing Practice
New Course on Research in MS Nursing Practice
02/09/2022
1129

It's official, we are adding a new course to our Catalogue! Starting in Octobert, MS Nurse PRO, supported by ECTRIMS is launching an advanced module on 'Research in MS Nursing Practice'.

Impact of alcohol on MS
Impact of alcohol on MS
17/08/2022
943

'How will drinking alcohol affect my MS?' is probably a question our nursing community has heard many times. We have collected a number of facts, research, and tips for you to bare in mind during your next appointment.

MS Nurse PRO is now available in Hungarian
MS Nurse PRO is now available in Hungarian
28/06/2022
1105

A huge welcome to our Hungarian-speaking community members. We are looking forward to hearing and learning from you.

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