" It has been an outstanding ECTRIMS Congress. The speakers delivered high-quality presentations, providing a comprehensive overview of the evidence regarding Brain Health (Nurses’ Session 1) and Self-Advocacy (Nurses’ Session 2).
They highlighted excellent research in each field and shared testimonials and case studies on these important topics.
Their contributions undoubtedly enhance and disseminate knowledge throughout the MS Nursing Community."
- Miguel Ángel Robles, co-chair of the Nurse sesssion II at ECTRIMS and member of the MS Nurse PRO Syllabus Committee
MS Nurse PRO joined ECTRIMS in several ways:
In collaboration with IOMSN, MS Nurse PRO ensured insightfull nursing sessions at ECTRIMS2024.
+120 nurses learned about brain health and self-management & self-advocacy in two sessions.
If you registered for ECTRIMS, you can review the session via this link until end January 2025.
The evidence on brain health in MS, Erin Wilkinson, Nurse Practitioner specializing in MS and neuroimmunology at the Cleveland Clinic Lou Ruvo Center for Brain Health in Las Vegas, NV, U.S. where she has been in practice since 2020.
Brain health oriented care in MS: a critical role for the specialist nurse, Liesbeth Van Hijfte, PhD, Nurse, UZ Gent, Belgium
My story of a ‘like-normal’ life with MS, Catalina Cadiz, Nurse and Person living with MS, Santiago, Chili
The session was chaired by Amy Perrin Ross (Nurse, Member Syllabus and Steering Committee MS Nurse PRO, Oak Brook, United States) and Coleen Harris (Colleen Harris is the Manager/Nurse Practitioner of the University of Calgary MS Program)
If you registered for ECTRIMS, you can review the session via this link until end January 2025.
Patient self-management and self-advocacy in MS - superpowers to empower, Fiona Dyoung, an experienced MS Clinical Nurse specialist based at Auckland Hospital Neurology Department in New Zealand.
Linking self-advocacy & self-management in MS from the MS nurse competency document point of view, Mavis Ayer, a seasoned Senior Multiple Sclerosis Nurse Prescriber from Southampton, United Kingdom
Self-advocacy & self-management, a case study, Joelle Massouh, Clinical Manager of the Neurology Institute and the MS Center at Harley Street Medical Center, Abu Dhabi, UAE.
The session was chaired by Piet Eelen, RN, MSc Piet Eelen is a Clinical Nurse Specialist Multiple Sclerosis working in the National Multiple Sclerosis Center (NMSC) of Melsbroek, Belgium and Miguel Ángel Robles Sánchez, a MS clinical and research nurse at the Center of Multiple Sclerosis of Catalonia and attended several postgraduate courses focused on the management of people with chronic diseases as well as the Master of Health Promotion at the University of Girona.
Our survey of nurses caring for PwMS shows the specialised tasks nurses perform in symptom management, treatment monitoring and educating the PwMS.
The survey also confirms that a caseload of in excess of 300 PwMS is common among MS Nurses.
Conclusions that can be drawn from the survey suggest that increasing the number of nurse colleagues, increasing the availability of administrative support and access to psychological support for PwMS and increasing the ability to refer to a multidisciplinary care team can all contribute to enabling MS Nurses to focus on their specialised and essential tasks to support the wellbeing of all PwMS in their care.
Read more on the project and download the poster in this blogpost.
Join the quiz and strengthen your knowledge on various aspects of the workload of MS nurses.
If the QR code does not work, you can also complete the quiz via this link.
