Over 1 million Europeans live with Multiple Sclerosis (MS), most diagnosed in their 20s and 30s. MS is a chronic disease of the central nervous system, causing symptoms such as fatigue, vision and motor problems, cognitive changes, and difficulties with speech, mobility, and bladder function.
Specialised nurses are essential to make therapies effective. They are the workforce ensuring:
However, recent findings from a study conducted by the MS Nurse PROfessional programme reveal alarming trends:
1. More specialised nurses caring for PwMS (incl. digital skills)
2. Access to psychologist, physiotherapist, occupational therapist, social worker for PwMS
3. Access to and a central role for nurses within the multi-disciplinary team (MDT) and ability to independently refer
4. Less and more efficient paperwork & streamlined administration utilising digital technology
5. Nurse independent prescriber qualification is available*
* We acknowledge that in many healthcare systems, this requires an evolution of the legal and training framework.
We have launched a call for contributions, inviting MS nurse and patient to share their testimonials to support us in advancing our recommendations.
Building on this momentum, we are now preparing two key sessions, an online policy meeting and a live session at the European Parliament, bringing together European and national politicians, policymakers, and healthcare stakeholders. The goal is to share our findings and address one of the most pressing challenges in healthcare today — how to care without burning out — by exploring smarter workload strategies for (MS) nurses across Europe.
We want to confront the systemic challenges faced in multiple sclerosis (MS) care and to present concrete recommendations that can both improve patient outcomes and enhance nurses’ working conditions.
Join us in shaping that future!